Name
Balancing Between Open Access and Equity-oriented Data Collection: Developing Implementation Guidelines to Advance Mental Health and Substance Use Health Equity in Digital Solutions
Time
12:30 PM - 12:40 PM (EST)
Description

This presentation consists of the following sections: Introduction: Establishes a common understanding of “equity” and introduces the key issue—the balance between open access to care, equity-promoting data collection, and data governance. It also highlights a case study of Wellness Together Canada, a national digital mental health and substance use health (MHSUH) portal that provided critical 24/7 support during the COVID-19 pandemic (April 2020–April 2024). Main Section: Presents key outputs from planning and dissemination activities funded by the Canadian Institutes of Health Research. Key outcomes include: A summary of the scoping review on equity-promoting data governance and implementation frameworks in digital MHSUH solutions. Priorities for developing equity-promoting implementation guidelines for digital MHSUH solutions, informed by consensus-building activities among twenty diverse stakeholders—including persons with lived experience (PWLE), health equity researchers, health system administrators, data management experts, and leaders from organizations experienced in implementing digital MHSUH services. Consensus will be reached through the Nominal Group Technique (NGT), a structured approach consisting of an introduction, silent idea generation, idea sharing, discussion, and voting/ranking. Conclusion: Invites questions, comments, and suggestions from the audience, a broader group of potential knowledge users, on facilitators and barriers to implementing guidelines in real-world diverse settings, supporting their refinement/finalization and informing the future development of equitable, evidence-based digital MHSUH solutions.

Jenna Keeble Mary Bartram, Ph.D., RSW Hajin Lee
Location Name
Pier-2 Room